Palliative & Supportive Care

Translation and cross-cultural adaptation of the Posthumous Dignity Therapy Schedule of Questions to Brazilian Portuguese - CORRIGENDUM
Bennemann ACK, Paiva CE, Julião M, Chochinov HM, Pinheiro C, Costa RFA, Oliveira LC, Uchida Miwa M, Trevizan FB, Valentino TCO and Paiva BSR
Behavioral activation program for reducing depressive symptoms among the bereaved of cancer patients: A feasibility and preliminary effectiveness study in Japan
Asai M, Ogawa Y, Hirayama T, Sukigara N, Yoshikawa E, Furutani S, Fujimori M, Akechi T and Suzuki S
This study aimed to examine the feasibility and preliminary effectiveness of a behavioral activation (BA) program for the bereaved of cancer patients toward reducing depressive symptoms.
Compassion fatigue and palliative care in neonatal nurses
Bozdag F, Basdas O and Atlı N
Neonatal intensive care units (NICUs) emerge as one of the areas where palliative care is most needed. This study was conducted to examine the attitudes and compassion fatigue levels of NICUs nurses working in Şanlıurfa, where the fertility rate and infant mortality are highest in Turkey, toward palliative care.
Posttraumatic growth in young adults with parents diagnosed with cancer: Application of the self-regulation model
Shinan-Altman S and Becker L
The rising incidence of cancer has led to an increased number of adult children impacted by parental cancer. Previous research primarily focused on younger individuals, leaving a gap in understanding the experiences of adult children aged 20-35.
Resilience and spiritual well-being as resources for coping with radiotherapy and surviving in patients with glioblastoma
Dinapoli L, Caliandro M, Chiesa S, Marconi E, Capocchiano ND, Mazzarella C, Bartoli FB, Bracci S, Balducci M, Chieffo DPR, Fiorentino A, Valentini V, Tagliaferri L, Gambacorta MA and Dinapoli N
The primary aims of this multicenter, prospective observational study were to investigate spiritual well-being, resilience, and psychosocial distress in an Italian sample of glioblastoma patients undergoing radiochemotherapy. The secondary aim was to explore the influence of demographic, clinical, and psychological characteristics on survival.
Benefit-finding in children with advanced cancer and their parents
Siefring E, Olsavsky AL, Schaefer M, Sutherland-Foggio M, Himelhoch AC, Hill KN, Kenney AE, Humphrey L, Olshefski R and Gerhardt CA
Although pediatric cancer often causes significant stress for families, most childhood cancer survivors are resilient and do not exhibit severe or lasting psychopathology. Research demonstrates some survivors may report benefit-finding or positive outcomes following this stressful life event. However, considerably less research has included families of children who are unlikely to survive their illness. Thus, this study investigated benefit-finding among parents and their children with advanced cancer, as well as associated demographic and medical factors.
Be a burden
Frush BW
Exploring patient awareness of palliative care - optimal timing and preferred approaches
Trevizan FB, Paiva CE, de Almeida LF, Zimmermann C, Bruera E and Paiva BSR
To explore patients' awareness levels of palliative care (PC) and how this awareness shapes their preferences regarding the timing and approach for discussing it.
"I am going to die, and I don't know what to do"? The Answer of Enchiridion 17
Wernik U
Impact of an educational program on oncology nurses' attitudes and behaviors toward care of the dying
Hou X, Li X, Guo R, Wang Y, He S, Yang H, Bai D and Lu Y
Care of the dying is an essential part of holistic cancer nursing. Improving nurses' attitudes and behaviors regarding care of the dying is one of the critical factors in increasing the quality of nursing service. This study aims to examine the impact of an educational program based on the CARES tool on nurses' attitudes and behaviors toward care of the dying.
Facility- and community-level factors associated with hospice patient experience
He M, Davlyatov G, Orewa G, Qu H and Weech-Maldonado R
Mandated by the Affordable Care Act of 2010, hospices were required to provide information regarding the Hospice Quality Reporting Program, with a reduced reimbursement tied to hospices if they fail to submit data to the Centers for Medicare and Medicaid Services. The purpose of this study was to examine the association between hospice organizational and community factors and quality of hospice care as measured by patient experience through Hospice Consumer Assessment of Healthcare Providers & Systems (CAHPS®) survey.
Nurses' models of spiritual care: Predictors of spiritual care competence
Mascio R, Lynch S, Phillips JL and Best M
Previous studies have shown that nurses' spiritual care competence is related to characteristics of personal spirituality, training adequacy, and comfort, confidence, and frequency of provision of spiritual care. However, these studies assumed that all participants understood spiritual care in the same way, and used self-ratings of spiritual care competence, which are problematic. Our previous study found that spiritual care was understood in 4 qualitatively different ways that can be arranged in order of competence. This study aimed to re-examine the relationships between nurse characteristics and spiritual care competence, using spiritual care understanding as a proxy for competence.
Predictors of mortality among older adults discharged to or readmitted from a skilled nursing facility
Garcia MA, Mondragon N, Taffet G and Agarwal K
Previous studies have shown that patients who are readmitted to the hospital from a skilled nursing facility (SNF) have a higher mortality rate. The objective of this study is to determine factors associated with high mortality rate for older adults who require hospital readmission while on presumed short stay in SNF to trigger a goals-of-care discussion.
The mediating role of COVID-19 anxiety on the relationship between quality of life and spiritual well-being, and hopelessness: A study on cancer patients
Dığrak E and Akkoç I
The coronavirus pandemic has caused concern in the community, especially in patients. Spirituality, hopelessness, and quality of life have an impact on the management of the process in cancer patients during these crisis periods. To investigate COVID-19 anxiety's mediating role in hopelessness' relationships with the quality of life and spiritual well-being among cancer patients.
Knowledge and perception of older adults toward end of life and advanced directive in Nigeria
Cadmus EO, Oyinlola O, Obadare A, Adebusoye LA and Mahmoud K
Older adults often have a heightened awareness of death due to personal losses. In many low- and middle-income countries, including Nigeria, conversation about end-of-life issues and advanced care planning (ACP) among older adults is gradually emerging. Our study explored older adults' knowledge and perceptions towards advanced directives and end-of-life issues in a geriatric care setting in Nigeria.
Validity and reliability of the Turkish version of the Information Concealment Scale for Caregivers of palliative care patients
Çamcı G, Oğuz S and Ziya Özdemir M
This methodological study aimed to establish the validity and reliability of the Turkish version of the Information Concealment Scale for Caregivers of palliative care patients.
Prevalence of major depression, suicidal ideation, and mental health treatment among cancer survivors
Ye L, Ladbury C, Tam A, Eustace N, Wakabayashi L, Vermeersch J, Salman J, Sun V, Li R, Sampath S and Amini A
Cancer diagnosis and treatment can result in a significant psychological burden. This study sought to investigate the prevalence of major depression, associated treatments, and suicidal ideation in cancer survivors compared to a non-cancer cohort.
Making space for grief: The impact of remembrance programs for pediatric healthcare providers
Wiener L, Nautiyal P, McAdams S and Zoosman M
While caring for seriously ill children is a rewarding experience, pediatric healthcare providers may experience sadness and emotional distress when their patient dies. These feelings, particularly when not addressed, can lead to negative health and occupational outcomes. Remembrance practices can provide a safe space for staff to process their grief. This study explored pediatric healthcare providers' perceptions of an annual Pediatric Remembrance Ceremony (PRC) and a quarterly program, Good Grief and Chocolate at Noon (GGCN), to learn what components of the programs were considered meaningful and the personal impact on those who attended. The programs pivoted to a virtual platform during the COVID-19 pandemic, and the study also assessed providers' perspectives of attending the programs virtually.
Adaptation and validation of the Turkish version of the Bolton Compassion Strengths Indicators scale among nursing students: A psychometric analysis
Ercan F, Kızılırmak Tatu M and Demir S
The study used a methodological design to adapt a Turkish translation and validate the Bolton Compassion Strengths Indicators scale.
Stigma in Mexican patients with Lung Cancer: Psychometric Properties of the Cataldo Lung Cancer Stigma Scale (CLCSS) - Brief version
Flores-Juárez J, Galindo-Vázquez O, Ortega-Andeane P, Fresán-Orellana A, Montero-Pardo X, Estapé T, Arroyo-Hernández M, Cabrera-Miranda LA and Arrieta O
Stigma in lung cancer patients may be associated with various negative outcomes such as increased psychosocial symptoms, severity of physical symptoms, and may act as a barrier to medical help-seeking behavior. The Cataldo Lung Cancer Stigma Scale (CLCSS) is one of the most widely used instruments for assessing health-related stigma in lung cancer patients.
Case report: Poor prognosis or poor prognostication?
Tschanz J, Khan R and Bruera E
This case highlights the limitations of current prognostication and communication in clinical practice.